ALS Podcast

Episode 24 with Holly Bennett and Allison Walker

Holly Bennett has been one of the leaders of the Lehigh Valley Walk to Defeat ALS for over 10 years running and continues to raise money and awareness with the same energy as when she started. In this podcast, Holly joins Chapter Events Director Allison Walker, herself in her second podcast, to talk about the evolution of the Lehigh Valley Walk to Defeat ALS, why the cause is so personal to everybody, and how people can get involved. Join them at a Walk at www.gpcwalktodefeatals.org 

Episode 23 Marcia Obermann on Traveling with ALS

In this episode, Marcia Obermann talks about the challenges faced when traveling for people with ALS and gives some helpful tips for families during the busy travel season. These ideas include how to have lists handy, labelling cords, and working with hotels to make sure your accomodations are satisfactory.

Learn more about ALS and how you can participate, advocate and donate at www.alsphiladelphia.org

Follow the Greater Philadelphia Chapter on Social Media @alsphiladelphia 

Episode 22 with Shohini Banerjee

15 year old Shohini Banerjee, a Warwick High School sophomore from South Central, PA, was named grand champion at the North Museum Science & Engineering Fair for her ALS research project. She has even gone on to give a TedX talk on her research work and new understanding of ALS. This impressive young woman joins our podcast to talk about her research, why this cause is important to her, and her experience at the 2015 Hershey Walk to Defeat ALS. You can support the Hershey walk all year round at www.hersheywalktodefeatals.org or support the cause generally at www.alsphiladelphia.org 

Episode 21 with Lauren Santye

Lauren Santye joins the ALS Podcast to talk about how her family dealt with her mother's battle against ALS, the services utilized through The ALS Association, deciding to start a named fund in her mom's memory, and the work that goes into having a successful fundraising event. She also talks about the friends made as a result of the Ice Bucket Challenge. Listen and share and then get involved at www.alsphiladelphia.org and on all social media channels @alsphiladelphia 

Episode 20 Merisa Palovcak

Merisa Palovcak works as a Speech Pathologist with Good Shepherd Penn Partners, specializing in assisting people with ALS. In this podcast, she talks about speech and swallowing issues, how she helps people in the multidisciplinary setting, communication between caregiver and person with ALS, and when her services and advice become needed. This information from Merisa is valuable to people at any stage progression with ALS, as well as for their families.

Find out more about fighting ALS at www.alsphiladelphia.org 

Episode 19 Nicole Yarab

Nicole Yarab, Director of Certified Center Programs at The ALS Association, joins the ALS Podcast to talk about the benefits of multidisciplinary care, the scope of the national clinic programs, and the evolution of ALS care services. Listen, share, and donate online at www.alsphiladelphia.org or join a Walk to Defeat ALS team at www.gpcwalktodefeatals.org 

Episode 18 with Danielle Mariano

Greater Philadelphia Chapter board member Danielle Mariano joins the ALS Podcast to discuss her father's battle with Lou Gehrig's Disease, the named fund set up in his memory, and her involvement in the Hershey Walk to Defeat ALS. Join Danielle, her team, and over a 1,000 others on June 6, 2015 for the Hershey Walk to Defeat ALS at www.hersheywalktodefeatals.org 

Episode 17 with Delaney family

Karen Delaney Shideleff, along with sisters Kathy and Chrissie and cousin Chantelle with her daughter Delaney, take part in this podcast episode recorded literally in the halls of the United States Congress. The Delaney family was once again on hand for annual ALS Advocacy Days in Washington, DC to make the case for funding ALS research. Listen to their family story, which includes over two dozen members of the extended family having had a familial form of ALS, how they get involved in research studies, and their participation in the upcoming ALS Express bike ride and the Walk to Defeat ALS.

Join them at ALS Express on May 30 at www.als-express.org 

Join Delaney Strong and other teams at a Walk to Defeat ALS at www.gpcwalktodefeatals.org 

Episode 16 with Kelly Almasy RN, CRC

Kelly Almasy sits down with the ALS Association Podcast to discuss her role as Clinical Research Coordinator at the ALS Treatment Center at Pennsylvania Hospital. In this podcast, she talks about the process of clinical trials, why things take time and money, how people can get involved, and what motivates everybody at the ALS Center to work towards a cure. Listen and then join Kelly at an event, as a donor, or as an advocate at www.alsphiladlephia.org 

Episode 15 with PA State Rep Bryan Cutler

Pennsylvania State Representative Bryan Cutler joins the podcast to talk about his parents' battles with ALS, how the fight against ALS is personal to him, taking his story to Harrisburg, and how people can be effective advocates for ALS patient care and research.

Get involved in advocacy at www.alsphiladelphia.org/advocate or email Tony@alsphiladelphia.org