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Episodes
Stories from The ALS Association Greater Philadelphia Chapter
Episodes
Wednesday Apr 29, 2015
Wednesday Apr 29, 2015
In this episode, Barry Schultz and his wife Susan talk about his many years living with ALS, the support of family and friends, and their active participation in the ALS Express Bike Ride. Join Barry and his team Barry's Bikers, or form your own team, for the 2015 bike ride at www.als-express.org
Tuesday Apr 21, 2015
Tuesday Apr 21, 2015
For over a decade, Jim DeAngelis of the Lakewood BlueClaws baseball team and Allison Walker, Events Director at the Greater Philadelphia Chapter, have worked together on the Walk to Defeat ALS. What was once the Seaside Board...Walk to Defeat ALS is now the Lakewood Walk to Defeat ALS, which this year takes place on Saturday, May 2. In this podcast, Jim and Allison talk about organizing the walk, how it has grown, and why this event is so meaningful to both of them.
Wednesday Apr 15, 2015
Wednesday Apr 15, 2015
In this episode, Nina Kelly talks about her husband's battle with ALS, how the disease has united her family and community and, along with Planned Giving Manager Donna Cleary, talks about how individuals can be successful fundraisers for the ALS cause. Lean more about how you can get involved at www.alsphiladelphia.org and follow on Facebook, Twitter, Instagram and YouTube at @alsphiladelphia
Wednesday Apr 08, 2015
Wednesday Apr 08, 2015
In this podcast, Jen Dungee talks about her mother Sharon's long battle with ALS and how the disease impacted the entire family. As ALS devestated her mother's body, it could not take her spirit. Jen talks about the happy memories they spent together as Sharon attended weddings, met grandchildren, saw her daughter get engaged, and participated in ALS events like the Walk to Defeat ALS and the Phillies Phestival. Join Jen at a Walk to Defeat ALS by registering at www.gpcwalktodefeatals.org and learn more about fighting ALS at www.alsphiladelphia.org
Wednesday Apr 01, 2015
Wednesday Apr 01, 2015
In this podcast, Steve Potter, a person with ALS from West Chester, PA, joins his wife Charlotte and Greater Philadelphia Chapter social worker Melissa Coll to talk about the benefits of ALS advocacy. The Potters have been visiting Washington, DC for many years to share their story and be a voice for people with ALS. Melissa and the Potters talk about the process of getting to Washington and the priorities of ALS research, the ALS Registry, and expanding access to speech generating devices.
Wednesday Mar 25, 2015
Wednesday Mar 25, 2015
ALS Association Greater Philadelphia Chapter Board Chair Jeff Abrams discusses his 30 years of working to support ALS patient care and research, the in-home care program that his father Howard I. Abrams started 20 years ago, and hope for the future resulting from the Ice Bucket Challenge and help from the Philadelphia Phillies.
Wednesday Mar 18, 2015
Wednesday Mar 18, 2015
Merritt Holland Spier, the Executive Director at The ALS Association Western Pennsylvania Chapter, joins the ALS Podcast to talk about coordinating with the Greater Philadelphia Chapter for state and national advocacy. Listen to her story and get involved at www.alsphiladelphia.org or www.cure4als.org
Wednesday Mar 11, 2015
Wednesday Mar 11, 2015
In this podcast, ALS Association President Barb Newhouse and national board member Ted Harada, who is living with ALS, join the discussion about the importance of ALS advocacy and the biggest priorities for advocacy in 2015. From research projects to speech generating devices to the power of personal stories, this podcast will give listeners a view of why ALS Advocates work hard all year long.
Wednesday Mar 04, 2015
Wednesday Mar 04, 2015
In this conversation, Alisa Brownlee discusses her nearly 20 years working with The ALS Association Greater Philadelphia Chapter and her role in helping people with ALS in using assistive communication technology. Alisa goes over the changes in technology to help people with ALS, from letterboards to iPads, eye gaze and even brain computer interface and shares her hopes for the future in ALS care and communication technology, as well as her work in training others and the benefits of the ALS clinic. You won't want to miss her insights.
Wednesday Feb 25, 2015
Wednesday Feb 25, 2015
ALS Association Greater Philadelphia Chapter board member Patti Lake-Quinn talks about how she has spent nearly a quarter century working to end ALS in honor and memory of her late husband Billy Lake, who lost his life to ALS over 20 years ago. In this Podcast, Patti talks about organizing events, what it is like being on the board, and the support of allies like the Philadelphia Phillies.