Mike Deeley’s ALS Story Part 1

June 21, 2017

Mike Deeley was diagnosed with ALS less than one year ago and in that time, he has already done a great deal to advance the mission of The ALS Association and fight for quality ALS care and research. In this podcast, Mike talks about the military connection to ALS, how he first noticed symptoms, and how he has started to get involved helping others. Listen, subscribe, share, and do more for the ALS cause at www.alsphiladelphia.org and follow on social media @alsphiladelphia 


Mike Deeley’s ALS Story Part Two

June 21, 2017

In part 2 of our Podcast discussion with Mike Deeley, he shares more about how he is working to support ALS patient care and research through advocacy and local events. Mike shows that as tough as ALS is, he's even tougher, and he's proving that with his rugby events and challenge through https://rugbysmashals.org/ 

Listen, share, and watch their video at https://rugbysmashals.org/ as well as find more ways to advocate and donate at www.alsphiladelphia.org Make sure to follow on social media @alsphiladelphia as well! 


Thank you to Mike Deeley for sharing his ALS story and for his service to the country as a US Navy veteran. 


Episode 89 Dr. Mary Sedarous

May 25, 2017

2017 marks the 40th Anniversary of The ALS Association Greater Philadelphia Chapter and part of Advancing the Mission includes expanding access to quality care for people with ALS and their families. The most important way to do that is through the ALS Clinics. In this podcast, Dr. Mary Sedarous discusses her team's work at the Hackensack Meridian ALS Center and their part in the ALS mission. As part of this podcast, Dr. Sedarous talks about the complications of ALS care, the benefits of a multidisciplinary approach, how her team works together, her experience with ALS, and her support of the Walk to Defeat ALS and other events. Listen, share, subscribe on iTunes, and get involved today at www.alsphiladelphia.org/40years 



Episode 88 George Pagano

May 17, 2017

George Pagano did something that few others have ever been able to do. In 2015, George rowed across the Atlantic Ocean, along with his rowing partner Caitlin Miller as part of the Talisker Whiskey Atlantic Challenge. He did it all to raise money to fight ALS in memory of his grandfather. In this podcast, George talks about the preparation for his journey, the help he got along the way, and how being on the open water got him closer to the ALS cause. Listen, share, subscribe on iTunes, and also learn more at http://www.thecranialquest.com/ 

Join the fight against ALS by donating, volunteering, or advocating at www.alsphiladelphia.org 


Ride to Defeat ALS Podcast with Marcia Telthorster

May 9, 2017

Friend of the 'Pod Marcia Telthorster joins Tony Heyl and Jamey Piggott to talk about the upcoming Ride to Defeat ALS and her team, Legs 4 Greg, honoring her husband Greg Telthorster. Marcia and Jamey discuss the logistics of the ride, how it can be fun and challenging, the end point at Morey's Piers, and why this event has been so special for the Telthorster family. Listen, subscribe on iTunes, share the podcast, and join Legs 4 Greg and other teams at the Ride to Defeat ALS by registering or donating at www.als-express.org 


Nurses Week Podcast

May 1, 2017

Nurses Week is the first week of May. The ALS Association Greater Philadelphia Chapter is thrilled to have exceptional nurses on staff to provide quality care to ALS families. In this Podcast, three ALS Association nurses who work at the ALS Treatment Center at Penn State Hershey Medical Center talk about working for the Chapter, what kind of work they do on a daily basis, and why they became nurses in the first place.

Listen to nurses Sue Walsh, Maureen Reid, and Annette Miller discuss their different paths to nursing and their equally different paths to ALS and then join them for the Hershey Walk to Defeat ALS at www.hersheywalktodefeatals.org 

Find more ways to get involved at www.alsphiladelphia.org 


ALS Association Social Workers Podcast

March 29, 2017

Social Workers are at the forefront of The ALS Association Greater Philadelphia Chapter's mission for ALS families. What does a Chapter social worker do though? In this podcast, Chapter social workers Melissa Coll, Anne Cooney, and Jayne Etskovitz talk about their combined 60 years of experience in social work, how they assist persons with ALS and their families, and some of their favorite memories and events at the Chapter.

Listen and learn about the value of social work and get involved during the Chapter's 40th anniversary at www.alsphiladelphia.org today.


ALS Registry with Jen Hjelle

March 9, 2017

The ALS Registry is a powerful tool to learn more about who has ALS in the United States and develop appropriate research proposals with different populations of people. In order for the Registry to work, people with ALS need to participate in a series of surveys. In this podcast, Jen Hjelle, the Executive Director of The ALS Association MN/ND/SD Chapter talks about their outreach to ALS families for the registry in more rural areas of the country and why they see the Registry as a valuable tool to end ALS.

Learn more about the fight against ALS, research, and participating in advocacy for initiatives like the Registry at www.alsa.org 


ALS Research Podcast - Biomarkers

February 9, 2017

In Part 3 of the ALS Research Podcast Series with Dr. Jill Yersak, we discuss the significance of biomarkers in understanding ALS progression and developing new treatments. Dr. Yersak answers questions on this topic such as:

What are biomarkers?

How does one identify a biomarker for ALS?

Why are biomarkers important for ALS research?

What is the future of this avenue of study?

Listen, subscribe, and learn more about biomarkers and other aspects of ALS research at www.alsa.org/research/ 


Advancing the Mission through Advancing Communication

February 2, 2017

In 1977, The ALS Association Greater Philadelphia Chapter started with a promise to listen to people with ALS and create solutions to their every day needs while investing in research to end ALS for good. When Alisa Brownlee started with the Chapter in 1996, there were not many ways for the Chapter to do that listening except in face to face meetings. Since she began, the technology at the Chapter and nationally at The ALS Association, has grown by leaps and bounds to better assist ALS families while providing information and services faster than ever imagined.

In this Podcast, Alisa talks about how the Chapter went from only having one computer with internet access in 1996 to now communicating and serving ALS families through a multifunctional website, social media, video streaming, Telemedicine and more. Listen, share, subscribe and get involved today to continue #AdvancingTheMission at www.alsphiladelphia.org