November 30, 2016
ALS is a difficult and complicated disease. Most people who are affected by ALS have not spent much time researching it until they or someone that they care for has been diagnosed. Everybody has questions, from the very general understanding of the disease to details about research, genetics, and more.
Dr. Jill Yersak, Manager of Research Communications at The ALS Association, is sharing her expertise in a running series on ALS research questions. In this first Podcast, Dr. Yersak starts the conversation by talking about What is ALS? This episode discusses the various forms of ALS, how it impacts the body, and some of the resources that are available through The ALS Association. Learn more about ALS, research, and Chapter services at www.alsa.org
November 22, 2016
Maureen Reid is a nurse at the ALS Treatment Center at Penn State Hershey Medical Center, where she supports patient families. She knows ALS all too well as she lost her husband to the disease, giving her even greater reason to provide compassionate care to those affected by the disease.
In this special Thanksgiving podcast, Maureen talks about her background in nursing, the high quality of staff at Hershey Medical Center, and the progress she sees for patient care. Listen, share, and learn more about ALS and how to get involved at www.alsphiladelphia.org
November 17, 2016
2016 marks the 20th anniversary of the ALS Association Treatment Center at Penn State Hershey Medical Center. One of the newer healthcare professionals at the clinic is Alair Altiero, PhD., who assists ALS families as the mental health clinician. Not only does Alair run the resource group at Hershey Medical Center, but she also oversees the group program for the entire Greater Philadelphia Chapter.
In this podcast, Alair talks about her role and what it means to be a part of a long standing professional ALS clinic. To learn more about the work at Hershey Medical Center and to get involved in the ALS cause, visit www.alsphiladelphia.org
October 20, 2016
In this Podcast, Chapter social worker Melissa Coll talks about the National ALS Registry through the Centers for Disease Control. The Registry helps guide knowledge of ALS and help researchers understand the numbers of who has the disease so that they can move on other important projects. Melissa here talks about the value of the Registry, how it empowers people with ALS, and why continued advocacy is important. Listen, share, and learn more about the Registry at www.alsa.org or www.alsphiladelphia.org or directly at https://wwwn.cdc.gov/als/
September 14, 2016
Each year, Ann Malloy and her family walk in the Greater Philadelphia Walk to Defeat ALS in memory of their father, Pat Malloy. They come together as part of team Pat's Posse. Now Ann is walking not just with her father in mind, but also her brother Patrick, who was diagnosed with ALS. In this podcast, Ann talks about what the walk means to her, how the team prepares, and why they find the Walk to Defeat ALS to be so positive and reaffirming year after year.
Join them on Sunday, November 6 by registering or donating at www.greaterphiladelphiawalktodefeatals.org
August 19, 2016
Long time Greater Philadelphia Chapter volunteer Larry Kaplan has embarked on an ambitious program to travel to every state in the country for the 50 in 30 Challenge - a campaign to do a unique bucket challenge in each state to raise money and awareness for the ALS cause. In this podcast, Jamey Piggott, an events manager with the Chapter, talks about how he joined Larry on the road for a week, seeing 16 states in 8 days to help him meet people from Ohio to Kansas and many places in between. Find videos and donate online at www.50in30.org today and learn more at www.alsphiladelphia.org
July 29, 2016
Chrissie Delaney Cohen lost her mother to ALS and her sister has lived with ALS for over 5 years. Recently, she travelled to the University of Miami to participate in ALS research studies to help understand the genetics of families affected by ALS. In this podcast, she talks about how she got involved in the program, what it entailed, and why others should search for more ALS studies for themselves. Learn more about ALS and how to get involved at www.alsphiladelphia.org
June 23, 2016
When Shelbie Oppenheimer was diagnosed with ALS in the 1990's, she and her husband Jeff quickly became a team united to find an end to the disease. Together they raised a wonderful daughter, get involved with ALS Association events, worked with the Phillies, and advocated on Capitol Hill in front of national lawmakers. Shelbie passed away from ALS after a long battle and Jeff continues to be a strong advocate and supporter. Listen to Jeff's perspective on this journey with ALS and then find more ways to get involved at www.alsphiladelphia.org
June 15, 2016
Wes Rose has been living with ALS for over 10 years. As a father, husband, advocate, and board member with The ALS Association Greater Philadelphia Chapter, Wes has fought ALS from all angles. In this podcast, Wes joins the discussion from his office at Arcadia University to talk about the support of the Philadelphia Phillies, his organizing efforts for Team Rose Pedals in the Ride to Defeat ALS, and how young people like his sons and their friends such as JD Florio, are next generation leaders to end ALS. Listen and support the ride at www.als-express.org
June 8, 2016
Matt Doroshow and the students at Colonial Middle School in Montgomery County, PA have run the extremely successful 4 on 4 for a Cure Basketball Tournament for the last few years to raise money for ALS research. In this podcast, Matt and two students in the Hoops for Hope Committee, MacKenzie and Charley, talk about organizing for the event and the excitement of bring people together for a good cause. They are so good at putting together this event that this year, it raised over $18,000!