ALS Podcast

Talk to Defeat ALS with Lenny and Jessie

Jessie Meier is a social worker at The ALS Association Recognized Treatment Center at Lehigh Valley Health Network. Through her years of working for people with ALS, she has come across many amazing stories, but she wanted a special way to highlight them.

Lenny Rafalko is a person with ALS who attends the ALS Treatment Center at LVHN. He was looking for an uplifting project, especially as the global pandemic turned the world upside down for everyone. Jessie and Lenny collaborated and created their own special podcast called Roots Radio to showcase some of these personal ALS stories.

In this Talk to Defeat ALS Podcast, Lenny and Jessie talk about the creation of Roots Radio, what they hope to accomplish, how ALS has affected them personally, the work of the Philadelphia Phillies to Strike Out ALS, and more.

Listen and share and find their podcast online at: https://rootsradioals.captivate.fm/

Join the LVHN team for the Lehigh Valley Walk to Defeat ALS at www.lehighvalleywalktodefeatals.org

Learn more about ALS, our services, and how to get involved at www.alsphiladelphia.org

Talk to Defeat ALS - ALS Focus

The ALS Association continues to find new ways to listen to all parts of the ALS community to better deliver its mission. In this Talk to Defeat ALS Podcast, Sarah Parvanta discusses the new ALS Focus survey project.

Topics include:

• Developing the right surveys using expert input
• What The ALS Association has already learned from surveys
• How people can participate and what voices are needed
• Creating the next round of surveys

Listen and share and learn more about ALS Focus at https://www.als.org/als-focus

 

Follow The ALS Association on Twitter @alsassociation and follow our Chapter on Twitter @alsphiladelphia and online at www.alsphiladelphia.org

Talk to Defeat ALS Jim Doyle

Jim Doyle has long been known as the voice of Berwick Bulldogs football. In this Talk to Defeat ALS podcast, Jim talks about the life of Bulldogs Coach George Curry and Coach Curry's battle with ALS, the disease that ultimately took his life in 2016. Jim discusses how the community rallied around Coach Curry and created the Berwick Walk to Defeat ALS.

 

This year, the Walk to Defeat ALS is using the Walk Your Way concept so that everyone can participate! Register for a walk now at www.walk2defeatals.org 

Talk to Defeat ALS - Conversation with Steve Spaulding on ALS and COVID-19

A new season of the Talk to Defeat ALS Podcast starts with Steve Spaulding, Director of Care Services at The ALS Association Greater Philadelphia Chapter as he discusses how The ALS Association has adapted to the challenges surrounding COVID-19.

In this episode, we discuss:

• Transitioning to Telehealth
• How Care professionals are helping more ALS families than ever
• Steps you can take to stay safe and keep others with ALS safe
• Why people with ALS are more at risk from COVID-19

Listen and share this discussion on whatever program you use for podcasts and support the fight against ALS at www.alsphiladelphia.org

 

Thank you to our sponsor First Keystone Community Bank for making this episode possible. If you have a topic or guest suggestion for the Talk to Defeat ALS, email Tony@alsphiladelphia.org 

Talk to Defeat ALS - Nurse Erica Smith

The ALS Association Greater Philadelphia Chapter is proud to have many exceptional nurses on staff to provide needed quality care for people with ALS and their families. For Nurses Week 2019, Erica Smith joins the Talk to Defeat ALS Podcast to discuss why she became a nurse, the challenges of being a nurse for The ALS Association, what makes her job so rewarding, and why more people should choose nursing. Erica also talks about her support of the Berwick Walk to Defeat ALS. You can support Walk to Defeat ALS teams, learn about the Chapter's care services programs, and donate to the ALS cause all at www.alsphiladelphia.org 

Talk to Defeat ALS - Social Worker MaryBeth Tomczak

March is National Social Work Month and our own MaryBeth Tomczak is joining the Talk to Defeat ALS Podcast to talk about her role as a social worker with The ALS Association Greater Philadelphia Chapter. She also talks about why she joined the social work field, the challenges of being a social work provider for ALS families, and what she hopes to accomplish this year for the ALS cause. MaryBeth works mostly in North East Pennsylvania, which brings its own unique challenges to providing care with a large geography, different county departments, and different understanding of ALS. Listen, share, subscribe and join MaryBeth and others in the fight against ALS at www.alsphiladelphia.org 

Talk to Defeat ALS Wendy Barnes- Social Work Month

March is National Social Work Month and our own Wendy Barnes is coming back to the Talk to Defeat ALS Podcast to talk about her role as a social worker with The ALS Association Greater Philadelphia Chapter. She also talks about why she joined the social work field, the challenges of being a social work provider for ALS families, and what she hopes to accomplish this year for the ALS cause. Listen, share, subscribe and join Wendy and others in the fight against ALS at www.alsphiladelphia.org 

Talk to Defeat ALS - Social Worker Maryann Jones

March is National Social Work Month  and we continue to highlight some of the amazing social workers who are so important to The ALS Association Mission. In this episode, Maryann Jones talks about how she became a social worker and joined The ALS Association Greater Philadelphia Chapter, what it is like working with the team at Hershey Medical Center, the challenges of caring for people with ALS, and why social work is so valuable and necessary. 

 

Listen, subscribe, share, and get involved in the fight against ALS at www.alsphiladelphia.org 

Talk to Defeat ALS Social Workers Melissa Anne and Jayne

March is National Professional Social Work Month and our Chapter is proud to be home to many compassionate and accomplished social workers who go above and beyond to support people with ALS and their families. This month, the Talk to Defeat ALS Podcast will feature interviews with Chapter social workers to learn why they became social workers, what their job entails, the challenges of being a social worker for The ALS Association, and why social work is so valuable. Listen to this special episode with Melissa Coll, Anne Cooney, and Jayne Etskovitz, share, subscribe, and learn more about The ALS Association Greater Philadelphia Chapter and how you can get involved at www.alsphiladelphia.org 

Talk to Defeat ALS - Frank Esterle with Home Helpers

The Howard I. Abrams In-Home Care Program is a hallmark of The ALS Association Greater Philadelphia Chapter and a key part of the Chapter's mission for ALS families. In this podcast, Frank Esterle of Home Helpers talks about his organization's history of providing care for people with ALS, the stories that have impacted him personally and helped grow the relationship, and how Home Helpers is sponsoring upcoming events like the Help and Hope Research and Care Forum in March, 2019.

Listen, Share, and Subscribe on iTunes and then join the fight against ALS at www.alsphiladelphia.org